OP here. Wow, just wanted to say thanks for the hundreds of comments and emails. I'm touched (and a bit overwhelmed!) by the response. There are so many suggestions that it's hard to know where to begin. I'm trying to sort through the many responses and do some triage. I've already been down a number of paths that have been suggested (not to discount them, but I'm trying to maximize my chance of finding a solution, and not just go in circles).

At this point I really do feel like I need a good doctor to help manage this, and would really appreciate tips for a doctor in or near the Cleveland area. Thus far I haven't had much luck in that department (example- I have an appointment with an Endocrinologist at the Cleveland Clinic coming up- in OCTOBER!) My current doctor is now balking at my requests for various tests, so it's time to move on. Recommendations really, really welcome.

Thanks again everyone, you guys are awesome.